That is how I feel today. We are at the hospice. Lovely people, but all still have the same mindset that the doctors at the hospital did. It is over just keep him sedated and he will just be fine. WELL, my hero just needed a break. Yesterday the family that was closest all came by and visited with him. By the end of the day, he was more alert, but still very weak. They finally started moving his pain medication back to where it was before we went into the hospital. I had been worrying about having a new doctor to start all over with. (The hospice doctor takes over the care and all other doctors disappear.) God steps in and wa la...the doctor comes in (and while he is not the only doctor, he is one of them that will see the Hero) and surprise of surprises, he was the doctor that inserted the chest tube in the Hero's pleura space to drain the fluid off his lungs at the hospital. He, after visiting with the Hero, increased the pain long acting medication back to what it was before hospitalization.
That relaxed the hero so much that he fell asleep after being given the medication and slept from 9pm to 3 am. Now when you are in the room and want to sleep until 6am...not so cool...but when you are awaken by a wide awake time oriented and alert spouse that you have not been able to have a sane conversation with for 8 days...the sleep dissipates and you sit up and take notice. This is were we had a strong discussion with the night nurse. Her thought was just sedate him and it doesn't matter that he won't be able to think. I said 'no'...he wants to be able to make choices. The Hero after listening to the exchange, then told the nurse he needed pain relief, but did not want to be sedated. So she went to the doctor at 4am and asked for his pain medication to be completely put back to his home meds. Woo hoo...he now has a mind...they were giving him an anti-psychotic, and sleep medication. It pays to ask questions about what are you giving "me".
As I was contemplating all that has happened, it came to me that going through these times have given us lessons in enduring to the end. Christ says "endure to the end that you may have eternal life." I thought "hmmm, if we just sedate ourselves with "whatever", then we miss the opportunity to learn how to endure." I have learned that endurance is done with a clear mind and accepting heart.
Our children and the Hero too have frequently wondered why the blessings of healing when he goes through so much. It has sometimes had an appearance of Job. The Hero, even when his mind was clouded, found solace in trying to say a prayer. He remembered that prayers of gratitude to the Lord were important. Sometimes the prayers were a simple "Heavenly Father, please help me". I have learned that comfort permeates the person who has a prayer in their heart. There is great peace in him. Unless of course I leave and he didn't really realize that I had left, then it can be a challenge.
I must stop and pay attention to my hero. May the Lord be with me and thee. Hummer